Contact

The Rare Awareness Rare Education (RARE) Portal is managed by a small but dedicated team. Use the form below for general enquiries.

Please note: RVA staff cannot provide medical advice. For all urgent medical matters, please refer to the emergency department of your local hospital or call 000. For other medical matters, contact your medical and/or health team. If you are looking for support for a particular rare disease, click here.

For all media/interview enquiries, please contact: communications@rarevoices.org.au

Postal:	PO Box 138, Mentone, Victoria, 3194
Phone:	+61 (0) 497 003 104
Office hours:	Monday to Friday 9.00am – 5.00pm (AEDT)

DISCLAIMER: The information on the Rare Awareness Rare Education (RARE) Portal is intended for educational purposes only and does not replace professional advice.

Rare diseases typically display a high level of symptom complexity and variability. Individuals diagnosed with the same rare disease may be impacted differently and each person’s experience is unique.  Please seek support from qualified healthcare professionals to learn more about the most suitable care and support options for you.  See our Terms of Use for more information.

Development of the RARE Portal has been funded by the Australian Government and is one of the key deliverables of the National Strategic Action Plan for Rare Diseases.

Rare Voices Australia acknowledges Aboriginal and Torres Strait Islander people as the Traditional Owners of Country throughout Australia and as a priority population of the rare disease sector. We pay our respects to Elders–past, present and emerging.

The RARE Portal is a living website in ongoing development, with new information added regularly.

Got it!