RARE Helpline
The RARE Helpline aims to provide timely access to information and answer key questions people living with a rare and complex disease often face. The RARE Helpline is staffed by Rare Voices Australia personnel, including those with qualifications in psychology, social work, and Mental Health First Aid.
The RARE Helpline is not a crisis or emergency service.
In the event of an emergency, please call an ambulance on 000, or these support lines:
Lifeline 24-hour Counselling: 13 11 14
Suicide Call Back Service: 1300 659 467
Call for Assistance
0499 549 629
The RARE Helpline operates
Monday to Friday 9:00 AM to 5:00 PM (AEST)
What is the RARE Helpline?
The RARE Helpline is a service navigation and information helpline that can assist you in finding more information and support for rare diseases.
The RARE Helpline can:
- Support people to connect with existing reliable information.
- Provide resources that respond to people’s specific needs.
- Help to increase people’s health literacy and engagement with care and support services.
- Assist in connecting people with existing health services where possible.
The RARE Helpline CANNOT provide medical advice, interpret medical records, or recommend specific health professionals.
RARE Helpline Enquiry
The RARE Helpline form is currently unavailable due to
regular web maintenance.
You are welcome to call the RARE Helpline directly on:
0499 549 629
The RARE Helpline operates Monday to Friday 9am to 5pm (AEST).
The RARE Helpline is not a crisis or emergency service.
In the event of an emergency, please call an ambulance
on 000, or these support lines:
Lifeline 24-hour Counselling: 13 11 14
Suicide Call Back Service: 1300 659 467
The RARE Helpline Form should be available again from
Monday 10 March.
