Peutz-Jeghers Syndrome (PJS)
IMPORTANT INFORMATION
The information on the Rare Awareness Rare Education (RARE) Portal is intended for educational purposes only and does not replace professional advice.
Rare diseases typically display a high level of symptom complexity and variability. Individuals diagnosed with the same rare disease may be impacted differently and each person’s experience is unique. Please seek support from qualified healthcare professionals to learn more about the most suitable care and support options for you.
This page is still to be developed.
For more information on this disease, please refer to:
- Genetic and Rare Diseases (GARD) Information Center: Peutz-Jeghers syndrome
- Orphanet: Peutz-Jeghers syndrome
There is an Australian support group for Peutz-Jeghers Syndrome (PJS):
Facebook Support Group:
Peutz-Jeghers Syndrome Australian Support Group
URL:https://www.facebook.com/groups/3925033074184229/
Please note that RVA does not necessarily monitor or endorse each group/organisation’s operational governance. Facebook groups are not ACNC-regulated organisations and may not be linked to any registered organisation.
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