Skip to content
Rare Awareness Rare Education
  • Information
    • About
    • What Is A Rare Disease?
    • Commonly Used Terms In Rare Disease 
    • Importance of Early Diagnosis in Rare Disease
    • Disability Support Information
  • Community
    • Rare Disease Community
    • Aboriginal and Torres Strait Islander People
    • Culturally and Linguistically Diverse Community
    • Regional, Remote and Rural Community
  • Professionals
    • Healthcare Professionals
    • Researchers
  • Services
    • National
    • Australian Capital Territory
    • New South Wales
    • Northern Territory
    • Queensland
    • South Australia
    • Tasmania
    • Victoria
    • Western Australia
  • Rare Diseases
    • A-Z Rare Diseases
    • A-Z Support Directory
  • Contact
    • Contact
    • RARE Helpline
    • Contribute

SEARCH for a rare disease, support organisations and research.

Glossary

Quick Search: A B C D E F G H I J K L M N O P Q R S T U V W X Y Z Other

News
  • Sneak Peek: Rare Awareness Rare Education (R.A.R.E) Portal for Rare Diseases Logo

 

DISCLAIMER: The information on the Rare Awareness Rare Education (RARE) Portal is intended for educational purposes only and does not replace professional advice.  

Rare diseases typically display a high level of symptom complexity and variability. Individuals diagnosed with the same rare disease may be impacted differently and each person’s experience is unique.  Please seek support from qualified healthcare professionals to learn more about the most suitable care and support options for you.  See our Terms of Use for more information.

Development of the RARE Portal has been funded by the Australian Government and is one of the key deliverables of the National Strategic Action Plan for Rare Diseases.

 

Rare Voices Australia
+61 497 003 104
info@rarevoices.org.au
PO Box 138
Mentone VIC 3194
  • Information
    • About
    • What Is A Rare Disease?
    • Commonly Used Terms In Rare Disease 
    • Importance of Early Diagnosis in Rare Disease
    • Disability Support Information
  • Community
    • Rare Disease Community
    • Researchers
    • Healthcare Professionals
  • Rare Diseases
    • A-Z Rare Diseases
    • A-Z Support Directory
  • Services
    • State and National Services
  • Contact
    • RARE Helpline
    • Contribute

SIGN UP NOW to receive the latest news about the RARE Portal.


 

Rare Voices Australia acknowledges Aboriginal and Torres Strait Islander people as the Traditional Owners of Country throughout Australia and as a priority population of the rare disease sector. We pay our respects to Elders–past, present and emerging.

 

© 2023 Copyright Rare Voices Australia Ltd.
Terms of Use | Privacy Statement | Accessibility Statement

The RARE Portal is a living website with new information added regularly. You can contact the RARE Helpline for service navigation support.

Got it!
X