Looking for service navigation support for a rare and complex disease?

Please contact the RARE Helpline by visiting this web page or calling 0499 549 629.

In the event of an emergency, call an ambulance on 000 or these support lines:

Lifeline 24-hour counselling – 13 11 14

Suicide Call Back Service – 1300 659 467

The Rare Awareness Rare Education (RARE) Portal is managed by a small but dedicated team. Use the form below for general enquiries. Please do not submit any sensitive information via this form.